Tuesday, September 11, 2012

Aaaand We're Back at Step 1

The biopsy results finally came in this evening. We had a visit from our regular liver doc and from the attending on rotation. Here's the short story: liver tissue shows inflammation, but not in the typical amount or pattern of "classic" rejection. ALSO, there are a large amount of allergy type cells present and scarce bile ducts in each samples. (Usually they will see 3-5 in a typical biopsy). Side note, did you know that Amoxicillin can destroy your bile ducts?? YAY!
Guess what was prescribed for his strep throat?
I'm wondering why Amoxicillin isn't on the list of "no-no!!" meds for a liver pt.
Anyway. So, there are two competing thoughts. One doc feels that he is still in an episode of rejection, it is just not presenting as a typical case. The other feels that he is having a reaction to the antibiotic.
It all hinges on the labs that were drawn at Cook's on the 2nd.
Aaaaaand both diagnoses have totally different treatments.
If it is rejection, we start a week's worth of IV steroids.
If it is a drug reaction, well, we wait and let the inflammation resolve and we can go home!
Aye ye ye!

The major point to take away is that Weston is not going to lose his liver.
I haven't done a good job at pointing out that rejection is, in most cases, treatable AND somewhat expected.
However, if we can get away without suppressing his immune system with massive steroids, I'm all for it.
Oh, and Cook's did nothing wrong in prescribing him the Amoxicillin. Just wanted to point that out. It is actually one of the drugs that the liver handbook recommends. I KNOW! I'm going to have to sort that out. PS: We were very impressed with the ER at Cook's. They are good people :-)
So, yeah.
I guess we will wait and see what those labs were.

Meanwhile, I am thinking that all pediatric hospitals should have a psychiatric hospital attached to it for the parents.
Baby Bubby in the hospital slept a lot or was content with just being held.
Toddler Bubby in the hospital is going stir crazy.
AND it is IMPOSSIBLE trying to keep him from contaminating himself. EVERYTHING ends up on the floor; the hands are everywhere; fingers are rubbing eyes or in the mouth.
o-O
Today, we rode the elevator about 20 times. AND someone managed to push the emergency call button before I could restrain him.
Thankfully, we were exiting the elevator before they picked up.
I don't think my apology to the remaining passengers did much to assuage their irritation.
We made multiple trips to the laundry room, trying to do ONE load.
Laundry is a very cut-throat event, here.
Two washing machines for the whole place.
AND multiple trips around, here and there.
We went out to the garden for a little humidity fresh air and sunshine.
Bubby loves the fountains

Checking out pigeons
 So, that was our day.
We appreciate all the thoughts and prayers.
We are so humbled and blessed by all the people from all over that have put Weston and our family in the forefront of their minds this week.
Thank you :-)

2 comments:

Anonymous said...

Hugs and kisses for Weston! Get well sweetheart so Nana can hold you again!
Nana

Tracy said...

I am so glad to hear that regardless of what is going on, it is treatable. Sending lots of love and prayers your way.

Tracy

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