Is That A Light I See At The End Of This Dark Tunnel??

I think it is!

Yesterday they drew a special blood test to check for some enzyme that will tell them how to dose the Imuran to avoid the bad side effects.
Can't argue with the cautious approach.
The bummer is that its a "send out" lab...like California send out.
2-3 business days send out.
:-/

You're killing me smalls.
Monday? Tuesday?

In the mean time, he is finally off IV steroids and on oral steroids.
Can't wait till we are totally off steroids.
Check out little man's poor belly.

Poor baby.
The shirts that fit when he came in are too small and don't fit over his belly anymore.
He's gained over 2 lbs since we got here.
It is so tight and his little belly button is poking out.
Most is fluid; some might be chocolate milk.

My feeble attempt at reminding him how much he liked vegetables before all this mess.

We haven't slept well the last two nights.
Midnight and 4am vital sign checks are getting oooooooooold.
Not to mention, our new noisy neighbors that moved in last night.
Geez almighty.
As with any hospital stay, there is no rest for the weary. Someone is always waiting to mess with you; usually on the heels of the last person that was messing with you.
Just a bit of fair warning...the next person that says "I'm sorry for waking you up," gets a punch in the face.

Bubby concurs.

In closing, I've got to share something that our attending doctor this week told me.
Got to say, I really like this guy.

He's very into visuals and teaching; and actively involves me in their rounding.
Like, pulling up the labs and going over trends.
Maybe he realizes that I am a control freak and am impatient and demanding?
And it is better to just indulge that kind of crazy, freaky parent.
 

Today, as we were going over his labs, I noted that all his enzymes went up slightly.

He noticed I was freaking on the inside.
 

"You know, think of this as an airplane ride. The take-off is all tense and focused for everyone involved. Take-off is like the transplant and immediately afterward. Then, you get up in the air and you're cruising along. Most of the time, its a nice calm ride. But, every once and a while, you fly through a cloud and the plane shakes. The pilot knows that you're flying through a cloud and its a little shaky. The passenger thinks "OH MY GOD! WE'RE CRASHING!!
We, the doctors are like the pilots. We know he's flying through a storm. But, we know we're not crashing."

Well played, sir.

Well played.

I like that.
1,000 bonus points to you, Doc.