MRV showed varices (think varicose veins) at the site where his surgeon made the roux-en-y bowel loop during his Kasai 3 years ago! Also, another large vein is partially occluded or narrowed. Of course, this is rare. Like 3 kids a year. Shall we take a walk down rarity lane?? BA-1 in 18,000 live births; B+ blood type- ~8% of the population; undiagnosed bile duct obliterating illness- him and like one other kid; obscure GI bleeding at RY Loop site- 1 in 3 kids per year.
All I'm saying is he better be conversely lucky as he is unlucky. Lottery winner...professional athlete/dinosaur impersonator/Thomas the Train watcher.
Sooooo, tomorrow he will go to Interventional Radiology and they will scar those varices down which will keep them from bleeding (like some varicose vein surgery) and maybe see if they can open up that narrow vein.
I am happy to report that he has been holding his hemaglobin at 10 (Darn near low-normal) for 24 hours. Woohoo!
AND guess who got to eat real food?!
Yay, Bubby!! First time since MONDAY at noon. Hospital food probably never tasted so good.
On the home front, Ms. Lisa has been a God-sent helping us with Emmy. She got her dressed and ready to go for MEET THE TEACHER NIGHT!!!!
How precious is she?!
Her Kinder teacher is Mrs. S! So exciting!
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1 comment:
Praying all goes well tomorrow. He looks great for all of his problems.
Emily looks so cute! I hope you get to see her go to school on her first day.
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