Sorry for not posting yesterday. Not much happened. All the major decisions hung in the balance of today and his weight/fluid status.
The only thing of note was our meeting with Dr. Goss, the transplant surgeon. From whom we get the title of today's post. LOL I've never thought of his color that way, but I guess it does fit. Nothing "new" in the way of game changing decisions, but I did learn the following little factoids:
1. Rh factor does NOT apply to transplant. Meaning, Wes is B+, but could receive any B liver. I guess that it would really only make a difference if he were (-).
2. He is currently at 26pts. At 30+ pts, he is eligible to receive an O liver. (B and AB are much more rare than O and A)
We did a lot of "fishing" and laundry yesterday. Wes loves fish!
Getting to see all his fishy pals (and flirting) are the highlights of our walks.
Laundry was just too much fun for him |
Ok, so some disappointing news this morning. W gained too much weight over night and will have to have a round of albumin and lasix today. So, we can't go home tomorrow. But, I'm not totally bummed, because Dr. Karpin's goal is for Wes to go home. We'll have to see how he does over the weekend, and the maybe home on Monday?? Better yet, maybe a new liver this weekend??
Finally, believe it or not, I am at a total loss for words. Some truly kind, wonderful people from LT have come up with "Wishes for Weston". They are selling t-shirts and will wear them every Weston Wednesday to support our little man. My heart is so full. I knew we had "the ultimate support system", but Billy and I are completely and utterly blown away by this.
Thank you Candi, Raine, Amy, Sarah and Juli. From the bottom of our hearts, thank you.
4 comments:
**Update**
1/27/11 at 2135
I can already see a big difference after the albumin and lasix. Weston's belly is much softer and is finally resting comfortably.
I'm so impressed with your friends support.. Thank them for me also.. It means the world to us..
Sending warm wishes and prayers for you all..love granny
God has sent soooo many angels to surround you guys. A HUG thank you to them all.
Where can we go to get the tee shirts, etc.?
MeeMaw
I have been reading Wes's blog daily. Judy is my neighbor and I have been praying for your family each day. It is such a blessing to see that he has recieved his liver and will be a healthy happy little boy very soon (though he has seemed to be happy through this entire ordeal lol). May God bless your family...
Kathy Ardi
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