Saturday, January 29, 2011

Our Miracle

On our 13th day at Texas Children's Hospital, our prayers were answered. There was a liver available for Weston. Oh my God, the bittersweet joy was overwhelming. If you pray for Weston, we are asking to include our donor, our Hero and his/her family. Without their sacrifice and ultimate generosity, our son's life would still be in danger.

Today is the first day in Weston's life that he is getting BETTER! He is still intubated and will more than likely try to extubate tomorrow. He is running a low grade fever, but so far nothing they have cultured is growing any bugs. The doctors are not terribly concerned at this point, but will continue to watch it. Weston is requiring a lot of sedation to stay comfortable while on the ventilator. Poor baby.

Now for the pictures...please be advised that some of these are pretty graphic. I'll put those at the very bottom.

Just heard it was his big day!!



Emily and her cousin Allie pooped out at their slumber party.



The last few pictures of yellow W








Speaking of yellow, HE'S NOT!! I swear that baby's eyes are clear the yellow is gone! Weston has NEVER had white sclera. His bili level was 13 before transplant...this morning it was 1.2!! Miraculous, I'm telling you!

Ok, stop here if you don't want to see the more graphic pics...







THIS was inside Weston. Poisoning him everyday. Good riddance!



The liver is GREEN. The doctors were shocked at how horrible it was. Biliary atresia did this to my son's liver in 6 months. We MUST stop this from harming any more children.

Finally resting comfortably



Look at his color!!!! No more BA!!

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6 comments:

Barb said...

Oh Ashley! I am overwhelmed with joy for you all! Giving praise and thanksgiving!! He's gorgeous! Especially when he's NOT yellow!!!
Hugs to all!
Barb

Anonymous said...

My beautiful grandson is my hero. He has kept us all in better spirits with his wonderful smile. He has also kept us all in touch with our precious LORD.. I can only hope the donor family can know just how much this granny is in their debt and will be all the days of my life..May God be with you amen

The H Fam said...

Wow,the difference the new liver has made is just AMAZING!! Praise be to God! My prayers will continue for you all and also to the donor family.

Anonymous said...

God is good! Thanksgiving to Him and thanksgiving to the family who gave so generously. Prayers for a speedy recovery so Wes can begin as a healthy miracle boy! Our prayers continue with you all. Carlette

Anonymous said...

To the donor & his/her family ... THANK YOU will never seem sufficient. Weston is "the man", and Mom & Dad are super heroes too. Can't believe the difference in such a short time.
Happy re-birthday Weston.
MeeMaw

Anonymous said...

Goldens,

Prayers have been answered! If ever I doubted the power of prayer,I will never doubt again. Blessings to you and yours as Wes begins his recovery. I've so appreciated your blog, Ashley. I follow it religiously, admiring your great spirit and ability to convey facts and emotions so clearly. xxoo Marie Peterek

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