Weston Update

We saw Dr. Z (Austin GI doc) this morning.

I expressed a little concern that MAYBE the transplant team was being a little too aggressive in wanting to get him listed and all that associated jazz.

My biggest immediate concern was the possible start of TPN (total parenteral nutrition, aka IV nutrition) if he had not gained sufficient weight.

TPN is a huge pain with MANY complications and serious considerations.

Weston was 15lbs 1oz (OMG!) and 24.75" today!

Dr. Z felt that TPN was not needed.

After he assessed Weston, he said that his liver was now hard and his spleen was enlarging. And therefore agreed that we should continue pursuing transplant at this point in time. He again reiterated that it is better to transplant him when he has been able to compensate and grow normally, as opposed to going into liver failure and then dealing with all those complications added on top of the transplant, itself.

It was very disappointing and upsetting to get the news that his liver is hard now...meaning there is significant scarring and damage.

I guess I keep denying that he really does need a liver transplant...

Once out of the office, I promptly called the transplant nurse, Julie, and reported the highlights of the appointment. AND they are thrilled with his weight gain and he will not need TPN! Which means, he can get his broviac taken out!! YEA!! Wes longs to splash and play in the bathtub, but has been restricted by not getting the broviac wet. Maybe before Christmas?!