We received some great news this afternoon...Weston has officially been added to the liver transplant list.
Since he is still relatively "healthy", he does not have many PELD (Pediatric End-Stage Liver Disease) points.
Right now, he is listed with 10 points, but our liver team is petitioning UNOS to increase his score to 24.
Every time the phone rings, I jump. This is going to be some process...
We are very grateful to Julie, our transplant nurse. She busted her butt to get him listed so quickly. I think it was their goal to have him ready before Christmas...
It is a very unsettling feeling to pray and hope for a liver. The liver has to come from a donor.
It just doesn't feel right.
But, we continue to pray for Weston.
2 comments:
Such a "catch 22", but great news. What a wonderful gift for this time of the year! Thanks and blessings to all of Weston's medical teams.
PawPaw & MeeMaw
Praying Ashley! And you don't have to pray for something tragic to happen to someone else's precious child. Sadly that happens all the time. Just pray that those grieving parents make a loving and generous decision when it does.
Blessings,
Barb
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