Untethered

Weston had his broviac removed this morning.

In a few days he will be able to enjoy his first real splish-splashy bath since the first part of October.

I am glad it is out, because it can be a major source of infection and I know it bothered him. But, I am also wary of any testing to come, because our line to draw labs is now gone...

It's been a pretty rough week.

My gut is telling me that Wes is teetering on the edge of a downward spiral.

As mentioned previously, his liver is now hard and spleen enlarged. We also learned that his bilirubin has gone from 6 to 10 and he is looking more yellow to me. Also, his stool has suddenly lost its color.

He is scheduled for his echocardiogram (ultrasound of his heart) next Thursday. This is the last test needed to present him to the medical team and have him added to the transplant list.

Our Houston liver doc called me yesterday to check in, and said that they may pre-post him with the pending echo results. Hopefully, Wes will be listed before Christmas. 

I can't lie, I'm pretty sad right now. 

I know I need to focus on the present and enjoy him being at home and his first Christmas and keep my spirits up for Emily and make sure that she enjoys the holidays and it is just as special and happy as always...

Sometimes it is hard not worry about what is to come.