I'm not going to say that I'm psychic. If I were psychic, I would have known that it would be his CBC values causing issues, not his liver enzymes.
But, I am definitely in touch with my medical ESP. I knew something was going to be problematic.
But, I refused to pack an extra set of clothing because I was just being silly.
Yep.
So, his liver enzymes were only slightly elevated, due to his current cold. Nothing to get upset about, no signs of rejection.
Then, Dr. Fishman did a double take at his hemaglobin level. So surprised by it, that he double checked to make sure he was looking at the right patient.
Seems as though Weston was seriously anemic.
The cause, unknown.
After another round of labs, we know that it is not autoimmune and that his iron level was almost non-existent.
But, I am definitely in touch with my medical ESP. I knew something was going to be problematic.
But, I refused to pack an extra set of clothing because I was just being silly.
Yep.
So, his liver enzymes were only slightly elevated, due to his current cold. Nothing to get upset about, no signs of rejection.
Then, Dr. Fishman did a double take at his hemaglobin level. So surprised by it, that he double checked to make sure he was looking at the right patient.
Seems as though Weston was seriously anemic.
The cause, unknown.
After another round of labs, we know that it is not autoimmune and that his iron level was almost non-existent.
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| After sleeping in the car, someone was ready to party Tuesday night. |
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| Wednesday Morning::My snuggle buddy |
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| A stud and a muffin. |
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| Waiting for his stat ultrasound. Already exhausted, and the hell hadn't even started. |
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| Ultrasound. Everything looked good. The liver portal vein was noted to be small, but had normal blood flow through. Not a cause for concern right now. |
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| Fishing. Waiting for the second set of labs |
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| Waiting for his unit of blood. After a two-stick IV start. |
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| Still waiting... Poor little guy. |
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| FINALLY |
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| Done with this day. |
Bubby received a unit of blood over THREE.HOURS.
If you haven't noticed, the majority of our day was spent "waiting".
So frustrating.
But, that's the nature of the beast, I guess.
If you haven't noticed, the majority of our day was spent "waiting".
So frustrating.
But, that's the nature of the beast, I guess.
The current game plan:
Check his stools for blood-may be that whole milk is irritating the intestinal lining
Start an iron supplement
Recheck his hemaglobin next week.
Recheck iron levels in 4 weeks.
While we were sitting in the infusion center, I noticed a family getting ready to leave.
The patient was a teenage boy; tired, but otherwise normal in appearance.
When they passed by us on their way out, the mother noticed Weston and smiled.
I couldn't help but wonder if she had been in my position years ago.
It was very disheartening to think that I could be in her position in the years to come.
Will Weston EVER have a normal life?
I couldn't help but wonder if she had been in my position years ago.
It was very disheartening to think that I could be in her position in the years to come.
Will Weston EVER have a normal life?
I know they tell us that their goal for him is for everyone to be unaware that he was ever sick...to look at him, you'd never know what he's been through. To do pretty much whatever he wants.
But, there we were, receiving blood.
Was it/is it foolish of me to think that with the exception of an occasional dose of steroids, we were done with this?
But, there we were, receiving blood.
Was it/is it foolish of me to think that with the exception of an occasional dose of steroids, we were done with this?
3 comments:
You have to realize that W has been through Hell and back and came back clean . To see that boy always smiling should be a good sign he's a happy baby. Yeah things aren't the greatest right now but be happy he's alive. Don't think about what's gonna happen in ten years, live in the now. Hold, kiss, smell that boy. He's all yours. Owns the moment.
Chin up Ash - our boys have been through more in their first months than most will in a lifetime. They are special and always will be. There will always be bumps in the road for them - that's just the way it goes unfortunately. That's why we have such a fantastic team of experts around us and what makes us such good mums. He'll get through this and the next thing and the next. They are strong boys and they are fighters - they wouldn't be here now if they weren't.
I understand completely how you feel - frustration doesn't come close and some days I deal with it better than others. Hang in there - you are both doing great!! Hugs from Houston, Jo xox
Oh, my poor little man.I heard all the trama he went through and have to reflect to last year at this time. We were holding our breath and waiting for some kind of miracle. The miracle came thanks to God and all of our prayers. This has been a wonderful year seeing him grow! He is a happy and loving baby. Hold on to all those great things because they grow so fast. He will get better and better every year. With life there are always ups and downs. He will come out ahead, I am sure of that.
I know a older man who has gone
through a liver transplant and he is doing well. He had the transplant over 20 years ago.We will always continue to to pray for Weston and he will be fine!
NANA
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