Seriously...What a Freaking Long Day

0000-Sleeping soundly in our plush hotel room...tons of awesome pillows, I might add (Courtyard Mariott on Main is the shizz!)

0230-Weston wakes up with a fever. We don't travel with a thermometer; I guess we need to start...Spend over an hour trying to console our poor little hot potato and trying to decide if we should go to TX Children's ER or wait for our appointment at the Liver Center.

0400-Wes finally goes to sleep. Mommy and Daddy enjoy the awesome pillows for a little while longer.

0700-Wes wakes up sweating like his daddy in church, we are rushing to get dressed, packed and checked out to catch our 0800 shuttle.

0800-Shuttle from the hotel to the Medical District. Most depressing bus ride ever, as our fellow patrons were mostly cancer pts of all ages.

0845-Meeting with Dr. Fishman, his transplant nurse coordinator and dietitian about Weston's plan of care and transplant future. Still running fever in the office...we will be admitted from the ER to Texas Children's

1040-Check in to the ER and are placed in a "room"

1200-Wes has had some labs drawn through his central line and had an abdominal ultrasound. Waiting on a room

1400-Waiting on a room

Waiting in the ER's cast closet...seriously

1600-Waiting on a room

1800-Waiting on a room, considering going AMA and driving back to Austin to Dell Children's

Holy Frick! STILL waiting!

2045-WE GOT A ROOM! 10 HOURS of waiting in the ER closet, we FINALLY have a room!!

We are currently on the 14th floor and Wes is doing ok. He is very restless, though; can't seem to get comfortable or full. Not to mention the parade of people messing with him. We were told to plan on staying at least until Friday. They are going to try to get some of the preliminary testing and evaluations done to get him on the transplant list. 

We have a very nice, corner room with a great view. Nice nurses and staff. Super cool GI attending. If we could have bypassed that whole ER disaster, I would be in love with TCH. Oddest thing...featured camel racing on TV. Not sure what that's all about...but W seems to be obsessed. 

View from our room

Rumors for what tomorrow holds: EKG, echocardiogram, more labs...