Tuesday, November 16, 2010

Home Again, Home Again

We were discharged from TCH at 3pm yesterday. Made it to San Antonio at 6pm. Had dinner, and then pulled into our driveway at 9:15pm.
Oh how wonderful it was to see Emily!
She was so excited to see us, too. She was so excited, that she tripped coming down the stairs and rolled half the way down. OMG! We were so scared. Thankfully, she emerged physically unscathed, just a little shaken up.
We love that little girl. And we despise being away from her for so long and often.
But, we know she is in good hands and enjoys being spoiled by Nana and GD.
**HUG** for my sweet E!


So, some things we learned...
1. Change of opinion on the cause for infection...again. Dr. Fishman checked in on us Monday afternoon and said that he thought it was a central line infection and today, our infectious disease doctor agreed. His liver function and biliruben did not worsen with the infection, and that is unheard of in cholangitis. So, it must have been the start of the line getting infected. 21 days of IV antibiotics...

2. Much to our displeasure, the prospect of me donating to Weston is very small. Because of his small size, he needs a small liver...even a lobe of mine would be too big for him. Also, the physical criteria for being a living donor is much akin to being an Olympic Athelete. Unless they have a brownie eating competition in the Olympics, I do not meet that criteria. 
I am very sad to report that currently, his donor will have to be a baby of the same age or a small child.
I really don't want to go any further on this topic...it is very upsetting.

3. Post-transplant recovery, Weston will not have any physical restrictions. They said he can play contact sports if he wants! 

4. We all need to be updated on our shots and get flu shots. EEP!

Holy guacamole, Thanksgiving is next week...
We have an appointment for E and Wes on Monday with their Pediatrician for well checks and vaccines. Tuesday, a follow up with Infectious Disease. 
Dec 1st, back to Houston for a follow up with Dr. Fishman.
Oh, and I am sure Dr. Z is in there somewhere, I just have to check my calendar!

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