We've just been going along with minor adjustments to W's ProGraf for the last month.
Weekly labs.
No real changes to the values.
Very jaundiced little boy.
All too frequent pale/less than acceptable poop.
Weekly labs.
No real changes to the values.
Very jaundiced little boy.
All too frequent pale/less than acceptable poop.
Then I was a bit blindsided Monday afternoon.
He has to have labs drawn Friday (tomorrow) and if there is not significant improvement, they want us to come in next week for a new medicine infusion.
Chemo.
I want to vomit. Cry. Smash things. Scream WHY?!
I had a hard time with the addition of Imuran.
Every time we start a new immunosuppresant I freak and worry myself sick about cancer.
Well, now he could get chemo.
Every time we start a new immunosuppresant I freak and worry myself sick about cancer.
Well, now he could get chemo.
I am terrified and angry and so, so sad.
As I am understanding, he is still trying to reject his liver. So, with this Rituximab it will basically target all his B cells (part of his immune system)...pretty much wipe them out and "reboot" the immune system.
Lots of prayers for a miraculous turn around.
We should know by Monday.
We should know by Monday.
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| His favorite bath time activity. |
1 comment:
My sweet baby will get lots of prayers. I hope and pray that he comes through this soon.
Give him hugs and kisses for me. Can't wait till I get to see them both tomorrow!
Nana
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